The Association is bound by the National Privacy Principles introduced by the Privacy Amendment (Private Sector) Act 2000. This legislation is designed to protect your rights with respect to personal information held by private organsiations.
The Association will review this Privacy Statement periodically and reserves the right, at its discretion, to modify or remove portions of this Statement at any time.
The Association recognises that individual privacy is very important. The goodwill of clients, donors and customers is important to us. We recognise that we must earn your trust through demonstrating that we have high standards for maintaining your privacy.
For the purposes of this Privacy Statement, personal information means information, whether true or not, and whether recorded in a material form or not, about an individual whose identity is apparent, or can reasonably be ascertained, from the information.
Donors and Telemarketing Customers: We collect and store the names, contact details, donation and /or sales history for both donors to the Association and customers of the Huntington's Disease Appeal, our telemarketing operation. None of this information is regarded as sensitive, as defined by the Act.
We hold this information securely. It is used only to meet our business and legal obligations and to assist us with our fundraising. We may contract with other organisations to assist us with our fundraising, however they must meet the same privacy requirements as the Association.
We are happy for donors and customers to see the information we hold about them, and to correct any mistakes. To exercise this right you need only write to us, giving your full name and address so that we can identify you. You may also ask us to remove your name from our mailing and callings lists and we will comply with your request. In this case, we will remove all the information that we hold about you unless there are legal or business reasons why we cannot do this. For example, we must by law hold records of tax-deductible donations for 7 years.
Clients: We collect some information about our clients that is regarded as sensitive as defined by the Act. The identification of a named person as someone with Huntington's Disease is an example of sensitive information.
We collect and hold only the minimum information required to provide services. We hold this information securely, and it is accessible only to staff of the Association who need to know it so as to provide you with a professional client service. We will not pass this identifying information to other organisations or medical professionals unless you consent, and it is in furtherance of the services you have asked us to provide.
Members: We collect and store the names, addresses, contact details, membership categories and payment details of all classes of members of the Association. None of this information is regarded as sensitive, as defined by the Act.
We hold this information securely. It is used only to meet our legal and statutory obligations and to assist us with the administration of the Association.
Access: Members and clients have entitlements under the National Privacy Principles to access the information that we hold about them. To exercise this entitlement, please write to the Association's President.
Website: We do not collect personal information on our website using cookies or other covert devices.
Further Information: Further information about the National Privacy Principles can be obtained from the Office of the Privacy Commissioner. (Website: https://www.oaic.gov.au/ or Privacy Hotline 1300 363 992.)
Approved by the Management Committee
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