Information - Huntington's Disease (HD)

Support Services

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AHDA Qld Inc

Support Services

Information about Support Services is contained on this page. By clicking on one of the links below, you will move directly down the page to the section of your choice......       

Welfare Staff
The Association provides information, assistance, advice and counselling to all persons involved in any way with HD. The Welfare staff makes regular regional visits to meet with families affected by HD, health professionals and staff at caring facilities. They also distribute educational material and information to those who care and support persons affected by HD and their families. This includes doctors, nurses, social workers and other health professionals as well as hospitals, nursing homes, community and welfare centres. The Welfare staff can be contacted through the HD Centre on telephone (07)3391 8833.

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Day Respite Centres
In recent years a Day Respite Service was established for persons affected by HD living in Brisbane and adjacent areas. This service benefits clients and carers alike.

The Day Respite Service operates once a week at both Annerley and Aspley with approximately 30 clients participating overall. Transport is provided for all clients attending the Centres.

The Day Respite program provides a range of activities, within the clients' capability, designed to enhance quality of life and maintain interpersonal, physical and manual skills for as long as possible. The daily program also includes therapies such as physical exercises and relaxation, intellectual stimulation, a nutritious meal, monitoring of the client's general health and outings such as indoor bowling, picnics and sightseeing.

Occupational Therapists, Physiotherapists, Speech Therapists, Social Workers, Medical students and Nursing student participate in the program, gaining knowledge and providing information, encouragement and support to clients.

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Family Support Groups
Family Support Groups have been established in Brisbane and Townsville. Regular informal family meetings are held where interesting and informative topics, ideas and experiences are discussed. Guest speakers may be invited or general discussions are held on topics related to HD. For information about meeting times and places, please contact the HD Centre on telephone (07)3391 8833.

Respite Holidays
Staff and volunteers facilitate short Respite Holidays for HD affected persons, offering a welcome change of routine and activity and also providing their carers with respite. Held throughout the year, these respite holidays are an extremely positive experience for both helpers and clients.

The Newsletter is circulated regularly to more than 400 families, health professionals and caring facilities.
Click here for more details.

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